The Marble Lady – the story of scleroderma in Ireland

Radio documentary about scleroderma

Radio documentary about scleroderma

This is a radio documentary on the topic of scleroderma (systemic sclerosis). It tells the story of patients in Ireland who suffer from this rare, debilitating and sometimes life-threatening auto-immune connective tissue disease.

The programme will allow the listener to look behind the word “scleroderma” – from the Greek words “skleros” meaning “hard” and “derma” meaning “skin” – and discover a world where the body suddenly hardens, producing an excess of collagen which damages the skin, vascular system and internal organs.

Told by the patients themselves, the story of scleroderma is punctuated with medical explanations and contextual information to ground the documentary in Ireland. The project, which was completed over 5 months, involved the collection of over 9 hours of audio recording during interviews with 20 people.

Its objective is to inform and educate the wider public in Ireland about this condition and the challenges faced by those living with it every day.

The project is my journalism masters thesis and awaits reviewing but will be released in September – watch this space!

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About monicaheck
Monica Heck is a bilingual freelance writer and journalist based in Dublin, Ireland.

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